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Hope for the Journey Blog

Hope For The Journey

Caring for the Caregiver: Self-Care Tips for Pediatric Caregivers

September 10, 2024 by Amy Kuzemka

Caring for the Caregiver: Self-Care Tips for Pediatric Caregivers Being a caregiver for a child with a life-threatening or life-limiting illness is a role that comes with immense emotional and physical demands. While the focus is often on the child and their family, it’s important to remember that as a caregiver, your well-being matters too. […]

Edmarc_Pediatric_Palliative_Care

What Does Pediatric Palliative Care Mean?

September 4, 2024 by Amy Kuzemka

What Does Pediatric Palliative Care Mean? When we think of healthcare for children, our minds often go to routine check-ups, vaccinations, and treating the occasional cold or scrape. However, for some families, the journey is far more complex, involving serious illnesses that require a more specialized approach to care. This is where pediatric palliative care […]

Caring for Your Child During Hospice Care

August 26, 2024 by Amy Kuzemka

Caring for Your Child During Hospice Care Caring for a child with a life-limiting illness is a journey filled with emotional, physical, and spiritual challenges. Pediatric hospice services are designed to support families through this difficult time, providing comprehensive care that focuses on comfort, dignity, and quality of life. This blog post aims to guide […]

Edmarc: Embracing Our Family Through So Many Stages

August 19, 2024 by Amy Kuzemka

The Burkett Family has been with Edmarc through many stages of their son, Barrett’s journey through the perinatal, hospice and now home health programs.

Making Memories with Your Child in Hospice

August 8, 2024 by Amy Kuzemka

In the heart-wrenching journey of having a child in hospice, moments can often feel overshadowed by the weight of grief and fear. Yet, even in these challenging times, there lies an opportunity to create beautiful and lasting memories. These memories become treasured keepsakes that honor the love and bond shared, providing comfort long after the hardest days have passed. Here are some heartfelt ways to make meaningful memories with your child in hospice.

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