Understanding the Difference: Hospice Care vs. Palliative Care When a child faces a serious illness, families encounter many new terms and types of care, including hospice and palliative care. Both services prioritize comfort and quality of life, yet they offer different types of support and apply to different situations. Here’s a closer look at the […]
Hope For The Journey
Honoring Our Wish – The Powell Family
Honoring Our Wish The Powell Family At 19 weeks pregnant, we received the devastating news that our daughter, Tyrah, had Trisomy 18. We were overwhelmed with hurt, fear, and uncertainty as we sat with a genetic counselor who told us all the reasons our daughter would not survive. As the conversation neared its end, we […]
Supporting Children When Someone They Love Has a Serious Illness
Supporting Children When Someone They Love Has a Serious Illness When a loved one is diagnosed with a serious illness, it can be a confusing and overwhelming time for children. They may not fully understand what is happening, yet they feel the emotional weight of the situation. As adults, we can help guide children through […]
How Is Hospice for Children Different from Hospice for Adults?
When we think of hospice care, it’s often in the context of adults, but children’s hospice care has unique qualities that set it apart. At Edmarc Pediatric Hospice, we understand the distinct needs of children with life-limiting conditions and their families. Here’s a look at how hospice for children differs from hospice for adults.
Caring for the Caregiver: Self-Care Tips for Pediatric Caregivers
Caring for the Caregiver: Self-Care Tips for Pediatric Caregivers Being a caregiver for a child with a life-threatening or life-limiting illness is a role that comes with immense emotional and physical demands. While the focus is often on the child and their family, it’s important to remember that as a caregiver, your well-being matters too. […]
What Does Pediatric Palliative Care Mean?
What Does Pediatric Palliative Care Mean? When we think of healthcare for children, our minds often go to routine check-ups, vaccinations, and treating the occasional cold or scrape. However, for some families, the journey is far more complex, involving serious illnesses that require a more specialized approach to care. This is where pediatric palliative care […]