Hope for the Journey Blog

Navigating Stress While Care Giving

Caring for a child with a life-limiting illness is a challenging journey. At Edmarc, we offer compassionate support and practical tools to help families navigate this path with love and strength
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Understanding the Difference: Hospice Care vs. Palliative Care

Understanding the Difference: Hospice Care vs. Palliative Care When a child faces a serious illness, families encounter many new terms and types of care, including hospice and palliative care. Both services prioritize comfort and quality…
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How to Talk to Your Child About Miscarriage and Stillbirth

How to Talk to Your Child About Miscarriage and Stillbirth Miscarriage and stillbirth are deeply painful experiences and explaining them to a child can feel overwhelming. Children may struggle to understand the concept of loss,…
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Honoring Our Wish – The Powell Family

Honoring Our Wish The Powell Family At 19 weeks pregnant, we received the devastating news that our daughter, Tyrah, had Trisomy 18. We were overwhelmed with hurt, fear, and uncertainty as we sat with a…
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Supporting Children When Someone They Love Has a Serious Illness

Supporting Children When Someone They Love Has a Serious Illness When a loved one is diagnosed with a serious illness, it can be a confusing and overwhelming time for children. They may not fully understand…
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How Is Hospice for Children Different from Hospice for Adults?

When we think of hospice care, it’s often in the context of adults, but children’s hospice care has unique qualities that set it apart. At Edmarc Pediatric Hospice, we understand the distinct needs of children…
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